What to do about bullies?

When my child started the first grade, we had no idea that he had Asperger’s Syndrome.  Symptoms began to surface fairly quickly once he was in school full time.  He seemed to have made some friends in September, but had lost those friendships completely by October.  I was teaching at his school, so I noticed how isolated he seemed to be at recess time.  He would be wandering the playground all by himself, sometimes visiting with his teacher, but more often than not he was completely alone.

We also noticed that he had mounting anxiety at home which would manifest itself through obsessive compulsive behavior, increasing phobias, decreased appetite (sometimes refusing to eat completely for two or three days at a time), and insomnia.  However, when I would ask him about school, he was unable to articulate what was going on or how I could help him.

As our son began to talk more and more about his experiences at school, he would mention the bullies that were there.  Nothing had been observed by me or by any of the other staff at school, but he insisted that the other children had been cruel to him.  As far as I know, my son did not experience any physical abuse at all.  The other children had simply told him to go away.  They had refused to play with him, and many children had told him that he was “gross” or “weird”.  However, this small amount of rejection proved to be an incredible obstacle for him to overcome.

bullyingMany children with Asperger’s Syndrome have problems with emotional regulation.  They may get stuck in cycles of anger, depression, or anxiety.  Of course all autistic symptoms vary from child to child (that is why they are called “Autistic Spectrum Disorders” because different children may experience a variety of symptoms in varying degrees.)  For my son, emotional regulation is very difficult.

Tony Attwood describes an extreme response to being bullied at school in, The Complete Guide to Asperger’s Syndrome.  He classifies it as Post Traumatic Stress Disorder (PTSD):

“Post Traumatic Stress Disorder can be the consequence of experiencing a traumatic event or series of events.  The clinical signs of PTSD include attempts to avoid the incident or memories of the incident, and signs of anxiety, depression, anger and even hallucinations associated with the precipitating event or events.  In the general population, PTSD is associated with war experiences and sexual, physical and emotional abuse.  I know that severe and repeated bullying can precipitate the clinical signs of PTSD in children with Asperger’s Syndrome.” (p 139)

The psychiatrist who treated our son confirmed that he was suffering from a trauma.  It took many months to help our son work through this, and it could not have been done without the help of a professional.
Since then, our son has been medically diagnosed with Asperger’s Syndrome, and we have begun to add many services to help him.  We are currently educating our son at home as we wait for the school district to formally evaluate his needs.  We are waiting to see if he qualifies for special education services.

But we are wary of trying school again.  When he was in school before, we didn’t know about his disability. Still, his teacher truly cared for him, and his mother was right next door, and he experienced enough rejection to traumatize him.

So what do we do about the bullying?  How do we protect children with Asperger’s Syndrome from experiencing abuse each and every school day?

9 Responses

  1. *hugs* It must have been horrible to watch him go through that.

    One thing that helps a lot of disabled kids & teens is getting an older kid to look out for them on the playground. Have you and his teachers thought about getting him some kind of “buddy” in the class above him?

  2. Thanks for your input and for your empathy. I have thought about a buddy system, and will discuss this with the IEP team in March. I also sent the Autism specialist an even more detailed report about what happened to our son last year, and I’m hoping they’ll see the urgency of providing more support to avoid this happening again.

  3. Hi,

    I just want you to know that I was horribley bullied as a child at school (I have been diagnosed as ADD as an adult – but none of the meds help, so I am not sure). It started when I switched schools from a small Lutheran School to a larger Catholic school. I was not Catholic – which did not help. And I didn’t want to change schools because all of my friends were at the Lutheran School. So maybe I had a chip on my shoulder. But I had extreme difficulty making new friends. And quickly, the kids at the new school were actively avoiding me, even surrounding me at recess and calling me names or coming up to my desk before school when the teacher was busy grading papers and doing things like farting on me or just harassing me in any way they could think of. I tried to tell me parents and was told to ignore them, they would go away. This went on until I left the Catholic school in my Junior year of school. I demanded to leave after my sister (who was similarly teased) graduated. I was hysterical about it so my parents finally gave up and allowed me to go to public school.

    Things were somewhat better there – but I was so unsure of myself that I only made one friend at the school. College was ok but I did engage in damaging behaviors like drinking heavily and engaging in promiscuous sex.

    But the real trouble started in the work force. I was -terrified of my coworkers. I didn’t think anyone really liked me. I thought my bosses were out to get me and wouldn’t help me. I went through several jobs where there were a few people who were a little cold to me and that made me afraid to go to work – no matter how many others were nice to me. Then I got married to a wonderful man who let me just quit and heal. Now, at 40, I am ready to join the real world and am in Americorps trying to get used to being around people while pursuing a Masters in Education.

    Anyway, I am glad that you care about your child and believe that the bullying has to stop. My parents ignored me (they were also in some ways very cruel to me and critical as well). The school ignored me when I tried to tell what was going on. Or they made it worse by how they handled it.

    Keep fighting the system. Get your child all the help you can for social skill building – and get your child out of a damaging environment if possible. Could you homeschool? If you keep building the social skills while homeschooling, at least your child won’t be damaged by the cruelty of everyday school.

    Good luck. Keep protecting your child. And if he has to stay at school – make sure that he is protected more somehow. Anyway necessary. So he won’t grow up to be anything like me. Get him counseling with an Asperger’s specialist who understands the bullying and PTSD component, I have flashbacks and constant memories of those horrid events and weeks and months. My husband can tell you that not a week goes by when I don’t talk about some awful aspect of my childhood. I will pray for you son. I truly will,

  4. Hey Yana,

    Thanks for sharing. I’m so sorry about what happened to you. Blessings and hugs. I’m so glad that you found your husband. I am currently homeschooling my little boy. We just wrote his IEP and are planning to try school again in the fall with supports in place. My husband and I plan to keep a close eye on him. We will not let him suffer abuse because of his disability. I agree with you completely.

    He will have some assistant time on recess to help him practice the social skills he is learning. We are also going to have the autism specialist train his peers about his disability so that they can help support him. Read my peer training blog and let me know what you think.

    Blessings,

    Kristine

  5. I did read your post about teaching the peers about your son’s Aspergers. I do think that children do best when they know about and are taught to empathize with students who are different. I work in schools myself as a literacy tutor and have visited several classrooms. I have seen this approach work, and I have seen this approach fail. I have not been in the classroom everyday to see what was really going on during the training and the following days, weeks and months.

    I hope it works, because when it works it is really beautiful to see the kids protecting another child and loving that child maybe even more because they care about him/her in a deeper way.

    I will pray for your success! And thank you for the kind words. One thing I do know – PTSD has made me acutely empathic toward others’ suffering. I feel, in that regard, I am a better human being in the most important way. Isn’t there always something positive that come with the bad?

    May the Lord be with you and your son – watching over you and making the path clear.

  6. [...] However, it wasn’t until he started school that it escalated to a critical level. (See “What to do about bullies?”) The psychiatrist who helped our son recommended a small dose of Fluoxetine. Since our little [...]

  7. [...] a copy of the medical report, a description about my son’s last experience in school (see “What to do about bullies?”) and a detailed list of accommodations that I thought my son needed.  I am going to include my [...]

  8. May I publish this photo to accompany an article I wrote on how parents can help stop bullying?

    And of course I’d give full credit. So, if you give such permission, how would I cite for credit?

    Thank you so much.

    -stan shura

Leave a Reply